Sunday 1 August 2010

Flying Visit

Hi folks, I’m back after a long absence. I know it seems like I keep repeating myself when I say that things here have been hectic, but yet again this has been the case and time has caught up with me. So please bear with me.

Going back to May (yes, I know...), on Sunday 23rd May my father in law took part in the Walk for Skin in Manchester (in association with the British Skin Foundation), to help raise money for the Ichthyosis Support Group (ISG). Also taking part was Katrina Hughes, her partner Kevin Tuohy and their daughters, Abbie, Ellie and Hannah. Ellie is 3 years old and like myself has Bullous Ichthyoids (EHK). It was a great day, the weather was perfect if a little too hot for me, so there’s no way I could’ve done the walk myself. Ellie was a star though, she completed the walk along with her family in the heat and she did fantastically, far better than I ever could have.







To show our support, myself, my husband, my mother in law, my Mum and our good friend Joanna went along to meet them all at the finish line at The Lowry. We al had a lovely chat at the end and are keeping in touch which is great. My father in law raised £140 for the ISG and Ellie’s just giving page continues to exceed her £500 target, which is fantastic. I’d just like to take this opportunity to say a big thanks to my father in law for taking part in the walk for skin it means a lot to me. Also a big thank you to the Tuohy family and a big well done to Ellie, she truly is her Daddy’s little warrior. Big thanks should also go to everyone who took part in a walk for skin event all across the UK.

In other news, we have recently moved house. To cut a very long story short and without going into too much detail. We were not happy where we were living. It was on a main road, we had major problems parking our car (we had no drive or garage and added to that the fact that we had national express coaches parked outside or very close to our house virtually every night for weeks on end, it was ridiculous to be quite honest but there was absolutely nothing we could do - although I did put in a complaint to National Express about the situation and all I got was a reply telling me that the vehicles I mentioned - including their registration numbers - didn’t exist on thier records therefore must not be National Express coaches LOL how do they explain the fact that they had the usual ‘National Express’ logo all over the sides of the coaches and the 540 London as they usually do in the front idiots!! Anyway.... Enough of that lol). Also where we were living it wasn’t all that safe for our little boy especially now he is toddling, being on a main road and all that, and there are other reasons we weren’t happy there too but I won’t go on. Anyway, where we’ve moved to now is much nicer, much quieter, we have a lovely garden and our own drive. There’s even a lovely little park next to the house for Daniel to play on which is great, and he loves it so far.

Also since we moved, Daniel has celebrated his first birthday which was lovely. We had a combined birthday/housewarming party for him at our new house and all our family and our good friend Joanna joined us to celebrate. Everyone had a good tie especially Daniel which is the most important thing.



Hopefully it won’t be too long before my next entry. Until then..... Thanks for reading